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Activ
Activ is a community benefit organisation dedicated to promoting a better life by providing a range of choices and opportunities for people with disability and their families living and working in the community.
Although many of the direct services are provided for the Western Australian community, the website also has a useful library & information section and a parent information portal. In July 2007 the Allied Health and Education Learning Hub launched a new Healthy Start resource collection in collaboration with the Activ library.
www.activ.asn.au

Australasian Society for the Study of Intellectual Disability (ASSID)
ASSID's mission is to enhance the skills, knowledge and commitment of it's members and to facilitate a supportive network in order to enhance the quality of life of people with intellectual or developmental disability. Its aims and objectives are:

  • To promote the study and understanding of intellectual disability;
  • To provide a forum for people who have a personal or occupational association with intellectual disability;
  • To bring together those working in the field of intellectual disability;
  • To facilitate communication between members via conferences, national networks, symposia, workshops and lecture tours;
  • To publish journals, magazines, newsletters and brochures of interest to members and the wider intellectual disability community;
  • To foster high principles and standards of work practice;
  • To promote and safeguard the rights of people with an intellectual disability;
  • To advocate on behalf of people with an intellectual disability;
  • To frame policy with regard to services to people with an intellectual disability; and
  • To influence legislative developments in the area of intellectual disability.
    http://www.assid.org.au

Australian Institute of Family Studies (AIFS)
The AIFS is a centre of excellence for research and information on family wellbeing. The AIFS website describes a number of relevant projects, including a Longitudinal Study of Australian Children (LSAC), the Australian National Child Protection Clearinghouse and the Communities and Families Clearinghouse. It provides access to numerous research articles and Australian and International reports.
http://www.aifs.gov.au

British Institute of Learning Disabilities (BILD)
The British Institute of Learning Disabilities is working to improve the lives of people in the UK with a learning disability. Their vision is a world where people with a learning disability are accepted as equal citizens with the potential to make a positive contribution to our communities. The website includes advocacy information, a ‘knowledge bank’ of factsheets, downloads & policy responses, and an online store for purchasing resources.
http://www.bild.org.uk/index.html

Developmental Disability.org
The Developmental Disability.org site provides useful information on developmental or intellectual disability in children and parents. The site is created by the Social Work Program at the Metropolitan State College of Denver. The site has links to videos telling real stories of parents’ experiences and has handouts with practice tips for working with families.
http://developmentaldisability.org

Disability, Pregnancy and Parenthood International
UK organisation that promotes better awareness and support for disabled people during pregnancy and as parents. The developers of the site are a UK charity that is controlled by people with a disability. The site provides access to a journal that is relevant to both practitioners and parents, and has a Forum where users can communicate with each other.
http://www.dppi.org.uk/

Disabled Parents Network
The Disabled Parents Network is a national UK organisation of and for disabled people who are parents or who hope to become parents. It has information for all parents, including parents with learning difficulties. Resources on the website include fact sheets for parents and booklists.
http://www.disabledparentsnetwork.org.uk

Foundation for People with Learning Disabilities
The Foundation for People with Learning Disabilities works to promote the rights, quality of life and opportunities of people with learning disabilities and their families. They carry out research, promote the rights of people with learning disabilities, improve services and spread knowledge and information. The website contains information & publication sections, where you can access factsheets and reports relating to various issues about community inclusion and independence, including relationships, employment, finance, communication, health, person centred planning, and advocacy.
http://www.learningdisabilities.org.uk/information/

International Association for the Scientific Study of Intellectual Disability (IASSID)
The International Association for the Scientific Study of Intellectual Disabilities is an international and interdisciplinary scientific non-government organisation with official relations with the World Health Organization. IASSID has special interest research groups on Parenting, Aging, Families, Health Issues, Mental Health, Profound Multiple Disability, and Quality of Life. The special interest group on parenting includes information about upcoming events, such as conferences.
http://www.iassid.org

Learning about Intellectual Disabilities and Health
This is a UK web-based learning resource for students and practitioners. It provides up-to-date information about the health needs of people with intellectual disabilities. It includes a section on parents with intellectual disabilities.
http://www.intellectualdisability.info/home.htm

National Center for Learning Disabilities (NCLD)
The National Center for Learning Disabilities (NCLD) works to ensure that the USA's 15 million children, adolescents and adults with learning disabilities have every opportunity to succeed in school, work and life. NCLD provides essential information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster effective learning and advocates for policies to protect and strengthen educational rights and opportunities. The website contains advocacy information and publications for download.
http://www.ncld.org/content/view/365/341/


Norah Fry Research Centre
The Norah Fry Research Centre
is one of the leading centres in the UK for research into services for people with learning difficulties. Its principal interests are the evaluation and development of services for people with learning difficulties. Their website provides downloadable resources for supporting parents with learning difficulties and their children, including a review of issues and positive practice and a fact sheet for parents.
http://www.bris.ac.uk/depts/NorahFry

Parents with Disabilities Online
Website for parents with disabilities, providing information, support and resources. Includes the Parent Empowerment Network, an e-mail community of parents with disabilities, people with disabilities who hope someday to become parents, and (where applicable) nondisabled partners of parents with disabilities.
http://www.disabledparents.net/

Raising Children Network. The Australian Parenting Website
An Australian website to help parents and carers raise children aged 0-8 years. The Raising Children website provides practical tools and up-to-date information on child health, safety, nutrition, learning, parental wellbeing, family management and kids' activities.
http://raisingchildren.net.au

SECCA (Sexuality Education Counselling & Consultancy Agency)
SECCA is a non-profit organization based in WA designed to support people with disabilities, in their efforts to learn about human relationships, sexuality and sexual health across the lifespan; as well as helping them to develop skills that will empower them to make informed choices, while acknowledging their own individual capacity to enhance the quality of their lives.
The website has library listings, pamphlets & brochures, and an e-resource kit (Prevention from Abuse & Neglect) available for download in PDF format.
http://www.secca.org.au/home.htm

Social Care Institute for Excellence (SCIE)
The Social Care Institute for Excellence (SCIE) was established by Government in 2001 to improve social care services for adults and children in the United Kingdom. They achieve this by identifying good practice and helping to embed it in everyday social care provision. SCIE works to disseminate knowledge-based good practice guidance; involve service users, carers, practitioners, providers and policy makers in advancing and promoting good practice in social care; enhance the skills and professionalism of social care workers through our tailored, targeted and user-friendly resources. The website has several helpful publications regarding adults with learning difficulties, including parents.
http://www.scie.org.uk/publications/adults.asp

Special Parenting Services
This UK site describes a home-based parenting assessment and intervention service offered in England for parents with learning disabilities. It includes descriptions of research by members of the service. The site also has descriptions of pictorial resources practitioners can use when working with parents who have learning difficulties, along with prices and ordering instructions to obtain these resources.
http://www.rcht.nhs.uk/CornwallPartnershipTrust/OurServices/SpecialParentingService.aspx

Supported Parenting for Mothers & Fathers with Learning Difficulties
A UK-based website about and for parents with learning difficulties. Content for the site is based on the work of the Parents with Learning Difficulties Research Programme at the University of Sheffield. The site includes information from research conducted as part of the Programme, copies of published articles (where permission is given by publishers), tips for successful practice in working with parents with learning difficulties, and comments and pictures from parents with learning difficulties.
http://www.supportedparenting.com/

 


 

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